Marfan syndrome impacts an estimated 1 in 5,000 folks no matter race, ethnicity, or gender, and specialists estimate that almost half the individuals who have Marfan syndrome have no idea it. With out correct analysis and remedy, they’re at excessive threat for an aortic dissection and sudden dying.
Consciousness of Marfan syndrome and associated situations results in early analysis, remedy, and an prolonged lifespan. Probably the most highly effective means we are able to elevate consciousness is thru you, our volunteers. Your circles of relations, mates, co-workers, and neighbors, your data, your private journey, and your dedication can’t be matched by anybody exterior of our group.
February is Marfan Consciousness Month and you are able to do your half from the consolation of your individual dwelling on social media. Be part of America’s Charities and our member, The Marfan Basis, by taking part within the #MarfanAwareness throughout February.
- Give via your office: You’ll be able to make a major distinction by donating via office giving. Test along with your employer to see if they’ll double your donation with an identical present. Haven’t got a program? Click on right here to have your employer contact our crew about carry worker giving to your office.
- Increase aweareness: Assist The Marfan Basis elevate consciousness about Marfan syndrome by utilizing the library of ready-to-use social media graphics right here.
- Educate Your self: This month, The Marfan Basis has two webinars on the fundamentals of Marfan syndrome. On February 9, we’ll concentrate on medical administration with two members of our Skilled Advisory Board, Dr. Shaine Morris, pediatric heart specialist, Texas Kids’s Hospital, and Dr. Chris Malaisrie, aortic surgeon, Northwestern Drugs (register right here). Then, on February 16, we may have a Private Views Panel with members of the Marfan group speaking about how they coped when first recognized. (register right here).
There are various methods so that you can participate in Marfan Consciousness Month and each little bit helps. Click on right here for an inventory of extra methods to assist The Marfan Basis.